Dear Family & Friends
I thought I would send out an email with the update on my
health. First of all let me say, thank
you, thank you, for all the encouragement, prayer, support and concern that has
been showered on me this week. I have
really felt God’s presence and strength daily.
Just a brief history:
In 2009 or 2010 I started having some double vision problems. Doctor’s wanted me to have an MRI but I put
it off until March of 2011. It was in
that MRI that a tumor was found in my cavernous sinus which is located in the
center back of our heads. I probably
will never forget that day with the call from a doctor saying I had a ‘large
tumor’ and he was sure it would have to be removed. Shortly after that we found out is was most
certainly a benign slow growing tumor called a meningioma. It does not grow in brain tissue but in the
spaces in your head most often between the skull bone and the brain
tissue. After seeing a specialist up at
OHSU, I was told that this particular area of the brain is very difficult to
remove a tumor from so the best thing to do would be to watch it and have
regular MRIs. I had another MRI about 6
months later and it showed no measurable growth in the tumor but the
possibility of a aneurism behind my left eye.
After seeing another specialist up at OHSU they thought a cerebral
angiogram would be in order to look at both issues. So finally just this week I had the cerebral
angiogram. You may be wondering why I’m
so slow to do anything – we had to get individual medical insurance coverage a
couple years ago and I was denied insurance coverage because of the double
vision issue. Once you’ve been denied,
it’s impossible to get normal coverage.
I could get on the high risk state pool but the monthly premium was way
too high and we make just slightly over the wage where we were eligible for any
financial assistance. So we have had to
wait until our savings account has money in it before we proceed with the next
medical thing.
So back to the cerebral angiogram of this week. It went very well. My care was wonderful up at OHSU and other
then a bruised and sore groin I’m doing just fine. The angiogram test revealed that the aneurism
was small and the doctor told us nothing to be concerned about since most
likely it would never be an issue. He
was concerned about the tumor but since it wasn’t his specialty, he said he
would see if the doctor at OHSU who specializes in brain tumors would have a
look at the study and possible even come and see us before we left. Well, about 20 minutes later he walked in the
room. He said that if I were 75 and had
this tumor he would tell me to go home and forget about it, but since I was
still a ‘young woman’ (I loved that part), most likely something would need to
be done eventually. The tumor surrounds
the carotid artery on the right side and has blocked it about 80%. If or when it grows and blocks it more, some
action will need to be taken. There are
basically two options: brain surgery to
try and remove some or all of the tumor and a carotid artery bypass or
radiation therapy to try and reduce the tumor without damaging the carotid
artery. Both pretty risky and with
outcomes that would probably cause some other serious issues. He recommended that sometime in the future we
start looking into these options and consulting with some of the experts who do
this kind of thing. He is a neurologist
that could do the first option. He was
also saying that this kind of tumor may stay stable for a long time and then
occasionally they have a growth spurt.
So that is where things are at today. They were not able to help me with the double
vision issues so I will continue to have glasses that help and then sometimes
struggle with seeing well. I will try
and have regular MRI’s to check on the tumor and at some point start to gather
information from some specialists as to what is the best options down the road
if something has to be done. The doctor
who saw me also told me things to look for that would be warning signs that the
carotid artery is being too compromised.
Rick is also looking into possibilities for insurance
coverage. I don’t think there’s any way
we could ever proceed with anything without coverage. We still don’t even know what the cerebral
angiogram cost but hopefully we have enough saved with the discount we get from
OHSU to cover the cost.
Now to the spiritual aspect of all this. God is using this to grow me, to change me,
and to encourage others in their own difficulties. For all of us, only God knows our last breath
on this earth. For all of us, if we know
Christ as our Savior, we have such hope for more than this life. Sometimes things like this help us to sort
through our lives and get rid of some of the junk that has no eternal
significance. Wake up calls are always a
good thing and a tumor in your head is a definite wake up call! I totally rest in God’s sovereignty and
control over my life. I trust Him to
work out His good purposes in my life and hopefully my days to come will bring
Him much glory. I really have no
fear. How can I when I have a heavenly
Father who watches over all of my days.
One of my favorite sayings of recent is from Winnie the Pooh; “What day
is it” asked Pooh. “It’s today” squeaked
Piglet. “My favorite day”, said
Pooh. God’s Word says it best in Psalm
118:24, “This is the day that the Lord has made, we will rejoice and be glad in
it” Let’s live in the moment.
So there’s my thoughts and heart on this whole journey. Thanks again for caring.
Laurie